Guests, family and friends of Vaughn Rawson, managing director of Rawson Digital, and his wife Joanne got together for the eighth year to help families coping with the rare genetic condition known as Ataxia-Telangiectasia (A-T) which affects around 200 families in the UK.
The children of Vaughn’s close friends have the disease and Vaughn and his wife have been on a mission to raise funds towards medical research to speed up the process of identifying a cure or developing treatments which can delay or prevent A-T. To date, Vaughn and Joanne have now raised over £260,000 for the cause.
Vaughn Rawson said: “I have seen first-hand how devastating this disease is for the families it affects and this has always been our big motivation.
“We are so well-supported every time by the individuals and businesses which continue to pledge their money and time to the event. I can’t thank all our guests and sponsors enough for helping us to make sure it is a success each year.”
Simon Williams, Managing Partner at Jolliffes added; “Action for A-T is a deserving charity that Vaughn and Joanne promote and raise money for tirelessly. What they have achieved to date is outstanding in itself but what they can achieve with everyone’s support is amazing.”
Over 430 guests attended and raised more than £30,000.
This year’s ball was held for the first time at Bolesworth Castle. Guests to the event were treated to entertainment including tribute band, Take That Reunion, and Britain’s Got Talent dance sensation act Signature. There were also performances from North Wales band Universal Exports, talented singer Rebecca Ffoulkes and the host, comedian Aaron James.
Main sponsors were Jolliffes, Mercer & Associates Wealth Management and Caulmert.
Photo LtoR: Vaughn and Jo Rawson, Simon Williams of Jolliffes and Amanda Gregson and Darren Mercer of Mercer & Associates Wealth Management.
Action for A-T is a Surrey-based charity set up in 2011 by the parents of a child with the condition, which seeks to increase investment in A-T research and raise awareness of it. Most children with A-T appear healthy during the first years of their life before developing problems with poor balance and reduced motor coordination which is when families often realise something is wrong. A-T does not affect the mind and there are no learning or social difficulties linked to having the disease. More information at https://actionforat.org